Type: Document

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Amici Brief defending the right to zealous counsel for people subject to guardianship (May 2024)

Amici curiae (“friend of the court”) brief to support an appeal of a Missouri case involving critical right-to-counsel issues in adult guardianship cases.  10 disability and civil rights organizations joined this brief.

The amici brief argues that a person subject to guardianship has the right to hire a zealous advocate to challenge the terms of the guardianship under federal due process grounds, and it educated the court about best practices identified through national trends in the field.

Visit resource: Amici Brief defending the right to zealous counsel for people subject to guardianship


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PowerPoint – “La tutela no es la única opción: Apoyo de decisiones en la edad adulta” (March 2024)

¿Cuál es el camino correcto para tu ser querido?

Únase a nosotros el jueves 28 de marzo de 2024, de 6:30pm a 8:00pm. por Zoom para conocer otras formas de apoyar a
las personas con discapacidades en la toma de decisiones sobre sus vidas. El Arc de Greater Haverhill-Newburyport,
Conexiones Latinx-MA y el Center for Public Representation están colaborando para ayudar a empoderar a las familias y
personas con discapacidades a través de educación e información sobre todas las opciones, incluida la toma de
decisiones con apoyo.

Proyectos: “Empoderamiento y Capacidad en la Comunidad Hispana” y “Apoyo a la Toma de Decisiones: Diversidad, Equidad e Inclusión.”  Financiado a través de una subvención del Consejo de Discapacidades del Desarrollo de Massachusetts, EE. UU. Departamento de Salud y Servicios Humanos de los Estados Unidos, Administración para la Vida Comunitaria, Adjudicación Federal No. 93.630.

Visit resource: PowerPoint – “La tutela no es la única opción: Apoyo de decisiones en la edad adulta”


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La tutela no es la única opción – Recursos y Formularios (March 28, 2024)

También compartiremos con usted un folleto con enlaces útiles a formularios y recursos relacionados con estas opciones, para que pueda hacerse una idea de cómo son y cómo funcionan.

Proyectos: “Empoderamiento y Capacidad en la Comunidad Hispana” y “Apoyo a la Toma de Decisiones: Diversidad, Equidad e Inclusión.”  Financiado a través de una subvención del Consejo de Discapacidades del Desarrollo de Massachusetts, EE. UU. Departamento de Salud y Servicios Humanos de los Estados Unidos, Administración para la Vida Comunitaria, Adjudicación Federal No. 93.630.

 

Visit resource: La tutela no es la única opción – Recursos y Formularios


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PowerPoint – “Guardianship is Not the Only Option: Supporting Decisions in Adulthood” (March 2024)

We want families and people with disabilities in Massachusetts to know about all their options for decision-making support in adulthood, so they can find the right fit for them.  We partnered on a training initiative, “Guardianship is Not the Only Option: Supporting Decisions in Adulthood.”

This PowerPoint was developed as part of a training initiative, “Supported Decision-Making: Diversity, Equity & Inclusion” and “Empower and Ability in the Hispanic Community,” funded in part through a grant from the Massachusetts Developmental Disabilities Council, U.S. Department of Health and Human Services, Administration for Community Living, Federal Award No. 93.630.

Visit resource: PowerPoint – “Guardianship is Not the Only Option: Supporting Decisions in Adulthood”


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Guardianship is Not the Only Option – Resources & Forms for Massachusetts Families (March 21, 2024)

We want families and people with disabilities in Massachusetts to know about all their options for decision-making support in adulthood, so they can find the right fit for them.  This handout providers useful links to forms and resources related to alternatives to guardianship in education, health care, and finances.  It is also available in Spanish.

This handout was developed as part of a training initiative, “Supported Decision-Making: Diversity, Equity & Inclusion” and “Empower and Ability in the Hispanic Community,” funded in part through a grant from the Massachusetts Developmental Disabilities Council, U.S. Department of Health and Human Services, Administration for Community Living, Federal Award No. 93.630.

Visit resource: Guardianship is Not the Only Option – Resources & Forms for Massachusetts Families


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(January 2024)

WBUR Commentary: “I’m an adult with autism. I built a team to help me make decisions.”

Visit resource:


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Decision-Making Project with Transition-Aged Students in Medford Public Schools in Massachusetts (February 2022)

This Report summarizes activities and findings from a project to promote alternatives to guardianship and Supported Decision-Making for youth through an innovative, replicable decision-making workshop that was piloted in the summer of 2021 as part of Medford Public Schools’ transition program in Massachusetts.  This PowerPoint summarizes the key results.  This project was funded by the Massachusetts Developmental Disabilities Council and facilitated by the Center for Public Representation (CPR) and Emily Berheide, CPR consultant.


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The Horror of an Unwanted Conservatorship, According to People Who Lived It (July 8, 2021)

Article on people who had their guardianship or conservatorship terminated. Features Cory, participant in CPR and Nonotuck Supported Decision-Making pilot, who had his guardianship terminated in favor of Supported Decision-Making.

Visit resource: The Horror of an Unwanted Conservatorship, According to People Who Lived It


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Letter from Senator Warren and Senator Casey on federal response of guardianship reform (July 1, 2021)

Letter to U.S. Department of Health and Human Services Secretary Xavier Becerra and U.S. Department of Justice Attorney General Merrick Garland regarding federal response of guardianship and conservatorship reform as highlighted by Britney Spears’ experiences.

Visit resource: Letter from Senator Warren and Senator Casey on federal response of guardianship reform


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Summary, Findings, and Recommendations of The Virginia Supported Decision-Making Pilot Project (2021)

Report from The Arc of Northern Virginia and the Burton Blatt Institute at Syracuse University about the success of the Virginia Supported Decision-Making Pilot Project.  Includes reporting on the ten individuals who participated in the pilot and used Supported Decision-Making with positive outcomes. Four pilot participants use Augmentative and Alternative Communication (AAC).

Pilot was funded by the Virginia Board for People with Disabilities.

Visit resource: Summary, Findings, and Recommendations of The Virginia Supported Decision-Making Pilot Project