Tag: families

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Making My Own Healthcare Decisions for People with Disabilities (July 2019)

A sample letter than can be used to explain your wishes about health care decision-making to a health care provider. This letter could be used as an SDM agreement if you are only interested in your supporters helping with health care decisions.

Visit resource: Making My Own Healthcare Decisions for People with Disabilities


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Turning Rights Into Reality: How Guardianship and Alternatives Impact the Autonomy of People with Intellectual and Developmental Disabilities (June 10, 2019)

Follow up report to National Council on Disability Beyond Guardianship 2018 report. This report explores the experiences of people with I/DD through interviews and research. Report discusses school-to-guardianship pipeline.

Visit resource: Turning Rights Into Reality: How Guardianship and Alternatives Impact the Autonomy of People with Intellectual and Developmental Disabilities






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SDM: Principles of Supported Decision Making & Supported Decision Making Approach and Practice (March 2019)

Guide on SDM that is tailored to individuals and families that describes core principles of SDM and also includes helpful tools for weighing decisions. Guide is available in Easy Read and Plain Language formats.

Visit resource: SDM: Principles of Supported Decision Making & Supported Decision Making Approach and Practice


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Supported Decision-Making A User’s Guide for People with Disabilities and Their Supporters (2019)

Manual for people with disabilities and their supporters to help understand how to use SDM. Contains useful tools such as checklists for deciding what type of support is needed in various areas.

Visit resource: Supported Decision-Making A User’s Guide for People with Disabilities and Their Supporters