This Report summarizes activities and findings from a project to promote alternatives to guardianship and Supported Decision-Making for youth through an innovative, replicable decision-making workshop that was piloted in the summer of 2021 as part of Medford Public Schools’ transition program in Massachusetts. This PowerPoint summarizes the key results. This project was funded by the Massachusetts Developmental Disabilities Council and facilitated by the Center for Public Representation (CPR) and Emily Berheide, CPR consultant.
Article on people who had their guardianship or conservatorship terminated. Features Cory, participant in CPR and Nonotuck Supported Decision-Making pilot, who had his guardianship terminated in favor of Supported Decision-Making.
Report from The Arc of Northern Virginia and the Burton Blatt Institute at Syracuse University about the success of the Virginia Supported Decision-Making Pilot Project. Includes reporting on the ten individuals who participated in the pilot and used Supported Decision-Making with positive outcomes. Four pilot participants use Augmentative and Alternative Communication (AAC).
Pilot was funded by the Virginia Board for People with Disabilities.
Letter to U.S. Department of Health and Human Services Secretary Xavier Becerra and U.S. Department of Justice Attorney General Merrick Garland regarding federal response of guardianship and conservatorship reform as highlighted by Britney Spears’ experiences.
Article based on podcast interview with reporter Sara Luterman discussing #FreeBritney movement and disability justice context. Includes discussion of Supported Decision-Making as an alternative to guardianship. Access full podcast and transcript here.
Statement from Disability Justice and Supported Decision-Making Advocates: Britney Spears Spotlights the Need for Change Now
Op-Ed describing Britney Spears’ conservatorship case including discussion of Supported Decision-Making as an alternative to guardianship.
Article discussing Britney Spears’ conservatorship and describing Supported Decision-Making as an alternative to guardianship and conservatorship.
Handbook from Disability Voices United for parents and supporters of people with intellectual and developmental disabilities. Contains advice about how Supported Decision-Making can work with people who use augmentative and alternative communication.
Handbook is specific to California, but contains excellent information helpful to families in all states.
The Conversation Starter Kit is a tool to help you have a conversation with a supporter, health care proxy, family member, friend, or other loved one about your – or their – wishes regarding end-of-life care and health care decisions generally. It is available in several languages and different formats. There are dedicated kits for discussions with your health care proxy, for people with Alzheimer’s Disease or other forms of Dementia, and for talking to your doctor, and for children with serious illnesses.