Type: Document

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The Horror of an Unwanted Conservatorship, According to People Who Lived It (July 8, 2021)

Article on people who had their guardianship or conservatorship terminated. Features Cory, participant in CPR and Nonotuck Supported Decision-Making pilot, who had his guardianship terminated in favor of Supported Decision-Making.

Visit resource: The Horror of an Unwanted Conservatorship, According to People Who Lived It


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Summary, Findings, and Recommendations of The Virginia Supported Decision-Making Pilot Project (2021)

Report from The Arc of Northern Virginia and the Burton Blatt Institute at Syracuse University about the success of the Virginia Supported Decision-Making Pilot Project.  Includes reporting on the ten individuals who participated in the pilot and used Supported Decision-Making with positive outcomes. Four pilot participants use Augmentative and Alternative Communication (AAC).

Pilot was funded by the Virginia Board for People with Disabilities.

Visit resource: Summary, Findings, and Recommendations of The Virginia Supported Decision-Making Pilot Project


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Letter from Senator Warren and Senator Casey on federal response of guardianship reform (July 1, 2021)

Letter to U.S. Department of Health and Human Services Secretary Xavier Becerra and U.S. Department of Justice Attorney General Merrick Garland regarding federal response of guardianship and conservatorship reform as highlighted by Britney Spears’ experiences.

Visit resource: Letter from Senator Warren and Senator Casey on federal response of guardianship reform


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For the Disability Community, Britney Spears’ Situation Is All Too Familiar (June 29, 2021)

Article based on podcast interview with reporter Sara Luterman discussing #FreeBritney movement and disability justice context. Includes discussion of Supported Decision-Making as an alternative to guardianship. Access full podcast and transcript here.

 

 

Visit resource: For the Disability Community, Britney Spears’ Situation Is All Too Familiar


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Document

Supported Decision-Making Handbook for Parents of Adults with Developmental Disabilities in California (November 2020)

Handbook from Disability Voices United for parents and supporters of people with intellectual and developmental disabilities. Contains advice about how Supported Decision-Making can work with people who use augmentative and alternative communication.

Handbook is specific to California, but contains excellent information helpful to families in all states.

Visit resource: Supported Decision-Making Handbook for Parents of Adults with Developmental Disabilities in California


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Conversation Starter Kit (2020)

The Conversation Starter Kit is a tool to help you have a conversation with a supporter, health care proxy, family member, friend, or other loved one about your – or their – wishes regarding end-of-life care and health care decisions generally. It is available in several languages and different formats. There are dedicated kits for discussions with your health care proxy, for people with Alzheimer’s Disease or other forms of Dementia, and for talking to your doctor, and for children with serious illnesses.

Visit resource: Conversation Starter Kit