SDM Resource Library

Type: Document

Document

Conversation Starter Kit (2020)

by Institute for Healthcare Improvement, The Conversation Project

The Conversation Starter Kit is a tool to help you have a conversation with a supporter, health care proxy, family member, friend, or other loved one about your – or their – wishes regarding end-of-life care and health care decisions generally. It is available in several languages and different formats. There are dedicated kits for discussions with your health care proxy, for people with Alzheimer’s Disease or other forms of Dementia, and for talking to your doctor, and for children with serious illnesses.

Visit resource: Conversation Starter Kit

Document

Go Voter Project (2020)

by Self Advocates Becoming Empowered (SABE)

The Go Voter project from Self Advocates Becoming Empowered includes many helpful videos and other resources about voting for self-advocates.

Visit resource: Go Voter Project

Document

The Story of the First Two Nations to Pass Landmark Disability Rights Law (December 2, 2019)

by Open Society Foundations

Information on event held by Open Society Foundations bringing together disability rights leaders who championed passage of laws eliminating guardianship and fully recognizing the right to legal capacity of persons with disabilities in Peru in 2018 and Colombia in 2019.

Visit resource: The Story of the First Two Nations to Pass Landmark Disability Rights Law

Document

Supported Decision-Making Toolkit (Wisconsin) (2019)

by Wisconsin Board for People with Developmental Disabilities

Toolkit about getting started with using Supported Decision-Making. This toolkit has some references to materials specific to the Wisconsin state law, but is useful for anyone interested in thinking about Supported Decision-Making.

Copies of the toolkit in Spanish and Hmong available at this link.

Visit resource: Supported Decision-Making Toolkit (Wisconsin)

Document

Making My Own Healthcare Decisions for People with Disabilities (July 2019)

by The Arc of the U.S.

A sample letter than can be used to explain your wishes about health care decision-making to a health care provider. This letter could be used as an SDM agreement if you are only interested in your supporters helping with health care decisions.

Visit resource: Making My Own Healthcare Decisions for People with Disabilities

Document

Turning Rights Into Reality: How Guardianship and Alternatives Impact the Autonomy of People with Intellectual and Developmental Disabilities (June 10, 2019)

by National Council on Disability

Follow up report to National Council on Disability Beyond Guardianship 2018 report. This report explores the experiences of people with I/DD through interviews and research. Report discusses school-to-guardianship pipeline.

Visit resource: Turning Rights Into Reality: How Guardianship and Alternatives Impact the Autonomy of People with Intellectual and Developmental Disabilities

Document

South Carolina – Supported Decision Making Manuals: for Individuals and Families, Service Providers, and Attorneys (March 2019)

by South Carolina Supported Decision Making Project

South Carolina Supported Decision-Making Project’s resource page contains a number of useful materials including:

Visit resource: South Carolina – Supported Decision Making Manuals: for Individuals and Families, Service Providers, and Attorneys

Document

Supported Decision-Making A User’s Guide for People with Disabilities and Their Supporters (2019)

by Disability Rights Maine

Manual for people with disabilities and their supporters to help understand how to use SDM. Contains useful tools such as checklists for deciding what type of support is needed in various areas.

Visit resource: Supported Decision-Making A User’s Guide for People with Disabilities and Their Supporters

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